Fasciculation-Myalgia Syndrome
October 30, 2012 | 20,00 EUR | answered by Dr. med. Kathrin Hamann
Hello,
For about 1.5 years, I have been suffering from severe pain (burning) in my calves, knees, heels, and thighs. At times, my legs give out, causing me to fall. I experience frequent muscle twitches, generalized fatigue, "pins and needles" sensations, numbness, muscle cramps and/or spasms in the affected areas (feet, calves, knees, and thighs), muscle pain and stiffness, headaches, and itching. This has become a chronic condition. I have started using a cane to help me walk. It is noticeable that both of my legs have constant twitches, which worsen as the day goes on.
I recently went for rehabilitation and a neurologist diagnosed me with Fasciculation-Myalgia Syndrome. In addition to this, I also have Restless Leg Syndrome (RLS). I am curious about the progression of the disease, how it spreads throughout the body... When I work, by the third day I can barely walk due to the pain. Do you still work, etc.? I am currently taking 70 mg of Amitriptyline. I know that this disease is very rare, so I would appreciate any feedback.
My other health conditions include moderate depressive episode, RLS, tinnitus, cervical osteochondrosis, lumbar MRI, and L4/5 issues.
Good day,
you are referring to the very rare Krampus myalgia fasciculation syndrome.
This mainly affects the larger muscle groups of the legs and arms. It is very painful and can be improved by heat and muscle stretching. The causes are largely unknown. However, as it occurs more frequently in gout and diabetes, a connection with circulatory disorders is suspected.
It can also occur in case of renal insufficiency, nicotine and alcohol abuse, electrolyte disturbances, as well as lumbar disc herniation. Thus, external influences (peripheral disturbing factors) are also possible.
Here, treatment with vitamin B complex for 7-14 days can be helpful in stabilizing nerve function.
Success with Tegretal (carbamazepine) is described in the literature.
As long as the cause and trigger are unclear, they cannot be treated and avoided specifically. Slow progression is therefore possible.
However, this may show improvement over time, so that stabilization or improvement without targeted therapy is possible.
In any case, I recommend regular visits to an outpatient neurologist.
Do you have any questions about this? I am happy to help.
All the best and a speedy recovery!
Best regards,
Dr. K. Hamann
